Wednesday, October 28, 2009

Doggy Drama

So, what's shaking at the Keen compound since my last blog like weeks ago? Well Robin and I have been up to so many things including moving everything around, upsetting the the dust bunnies as well as the other living creatures that take resident here in little ol Waynesboro. We've actually been working on getting organized which is a new realm for me. As I get older, organization has become a must to keep my life running smoothly; yes I have become a creature of habit I suppose.

One of the newest things to our quest was the purchase of an automatic watering bowl for Basil our nutty cat and Peppy our cute little Chihuahua, I know what your thinking, ankle biting motor mouth; he's quite the opposite very lovable and calm and the fact that he's getting up there in age attributes to his well behaved demeanor. Anyways, Basil is unfazed by this new fan dangled thing. Peppy on the other hand, is freaked out by it. It's sad but so hilarious, poor boy, to watch him drink from this thing. First, he approaches it with his neck stretched, ears back, and legs trembling; he drinks ever so slowly until the level changes and creates a bubbling sound that scares the crap out of him. Immediately he darts away and runs to find Robin; we can't help but laugh. Hopefully he'll get used to it; if not we'll rid him of the rogue alien that ate his old water bowl.

For several weeks I have been volunteering at Woodrow Wilson Rehabilitation. We have, well I have but Robin stays there to Shaffer me back home. We spent the first two weeks just getting to know one another so we weren't really studying the Bible; I believe a pastor and the church should form a positive relationship before beginning any type of church function, especially with specialized ministry. Last night was our very first lesson; three clients were in attendance and I brought with me a lesson I wrote earlier last week about the Darling sin, Idolatry. We called it that because it is so easy to be ensnared by this sin. The meeting went very well and we were all encouraged. It's funny, I go there to serve and bring others blessings through the Word of God and who gets blessed? I do. That little group is exactly what I needed for a long time coming. It warms my heart to be around others with disabilities. So not only do we help with the Word of God but by being a support for those that face many of the same challenges.

On November 11th I have decided to put my faith to test and bite the bullet. I will go in to get a pacemaker inserted into my left chest cavity just below my collarbone to control my heart rhythm. This pacemaker will have the capability to act as a defibrillator as well which is what I initially declined several weeks ago. Having said that, I will have them deactivate the shocking capability. I know I fought hard not to have this done, but I just can't deal with feeling like my heart is jumping around like a fish out of water. I have come to the point that I am in fear of living rather than dying and I refuse to feel like that. Hopefully, this pacemaker will do the trick and give me more precious time to be with my wonderful wife and serve the people I have come to love through the ministry.

Wednesday, September 9, 2009

Shocking Details

Today I am writing to you on Caring Bridge which usually means I am troubled or have been hit with a devastating blow from this Duchenne Muscular Dystrophy which is exactly what happened to me yesterday at my Cardiology appointment.

In order for you to get the whole picture, I have to take you back to Friday night somewhere around 8pm. I got ready for bed and laid down to watch a little TV before going to sleep. As I was relaxing while the Pulse Oximeter was doing it's thing; the heart rate alarm sounded and I'm like, "what the heck?" Robin took a look and noticed that my rate read 39 through the lower 40's. I wasn't all that surprised because my pulse has done this several times in the past and simply jumped back up to 80; this time it was different, my heart rate did not go back up at all during the night and following morning.

About 9am the next morning, we called, "the on call" Cardiologist; fortunately it was Dr. Luna who is my Cardiologist, rang us back. His suggestion was to stop taking my Coreg which is generally a blood pressure medicine and helps control congestive heart failure; it can also prevent further weakening caused by DMD. Then he said he wanted to see me Tuesday. Soon after stopping the Coreg, I felt better and my heart rate is staying in the 80's.When I saw Dr. Luna yesterday, he said that cutting back the dosage of my Coreg is a dangerous thing but having me completely off would be even worse.

So, the qquestion was "what now?" The dreaded answer was revealed once again after 2 years of refusing the Internal Cardiac Defibrillator or ICD. This time , my choices are death (from this world) or life saving ICD that can pace my heart and deliver a shock should I experience Vtach. I have decided to just put my trust in God and go through with the surgery to place the ICD. God has delivered me from the clutches of death before. And since He's the same God, why should this time be any different? I honestly feel good about this decision because I know my work here is not done. I've only just begun to be the "Jesus" that others may only see in a dim world. I'm not totally saying a dark world, I still have hope of making the world a little brighter at least my world. I am touching lives everyday rather out in the world or over the Internet. "You are the light of the world, a city on the hill cannot hide itself." Matthew 5:14.

God has poured His blessings upon me so many times; I do not deserve the love He has given me. Who am I that the King should die for me? Often, I qquestion, "Why have you blessed me so Father?" I am so honored to be called His; that He no longer looks at my sin. When God looks at me, he doesn't see my sin. He sees a faithful servant that is willing lay down his very life such as Christ did for humanity. "A good Shepherd lays down His life for His sheep." John 10:11

I never knew the impact that filthy old me could leave. I like to think I did something good in this life; something that pleased the Lord, something worthy enough to grant a pinch of Heaven, just a pinch like the sun shinning radiant beams through a thundercloud. When I think on that, I have done the greatest thing on earth. I have accepted Jesus Christ as my Savior and now I am made righteous, not self righteous, so that one day I would enter into that Glorious land of endless day. "Come to me all you burdened and heaven laden and I will give you rest." Matthew 10:28.

Monday, August 31, 2009

I Survived

Last night on the Biography Channel, I was watching "I Survived" which struck my attention because in the tag line it read "I Survived: Death and Back." I have always been somewhat interested in near death experiences especially after mine in 2005. I'm not sure if individuals who flat line are seeing glimpses of Heaven or what, but what was interesting was the bright light everyone saw during their time of medical death. One person in particular was a young woman who saw her life in the future; she visioned her husband, children, and grandchildren; she even felt how emotional she was to be seeing her grandchildren. None of these things happened yet, but I can't help but wonder if the guy she saw was actually going to be her husband, the kids she saw, were they actually going to be hers, and the grandchildren being her true grandchildren. I think she may have a very hard time being patient and will she know if the family in her vision when she meets her husband.



The reason I don't disclaim visions during near death experiences is one, who am I too say what they experienced and I have had something similar happen to me. I wish I could prove that near death experiences actually occur and I would like to believe they all involved Heaven; from what I watched last night they don't. Three individuals felt extreme peace and saw a bright light, perhaps it was Heaven, but one did not feel at piece and very much wanted to go back. Whatever these truths are, I'd like to find out more. If people do see Heaven is it only their perception?; is eveyone's Heaven or their own view of what they think? Who's ever to know the answer to these philosophical driven questions.

I for one can't say what I saw was Heaven during my adventure of suffering Respiratory Failure. In fact, I didn't see Heaven at all, at least I hope it wasn't Heaven but I indeed felt at peace. All I remember is being awake in this state of near death is me floating above me body and seeing a bright light; I don't know if it was the surgical light and the euphoria from the drugs or could it have been divine? There were these two figures beside my bed and the light radiated around them. I remember thinking to myself, "Man, this doesn't look good." I could here myself gurgling and the sound of what seemed like running water in this rather large Operating Room. The thing is, I was not in the OR when the doctors performed my tracheotomy, I was right there at my bedside in the ICU Unit. When I awoke, there was a small, bright surgical light atop of my bed. Was it the bright light I saw or a glimpse of something divine or could it have been the bright surgical light. Could the figures have been my doctors at my bedside glowing as the surgical light bounced off of them or were they some sort of angels watching over me? You draw your own opinion.

Despite some much unfamiliarity and several questions, I have drawn one conclusion that coincided with the program. Each of the individuals near death experiences including myself have had a very phenomenal, life changing, positive effect. One saw that life was precious and loves all of humanity now, another is looking forward to starting a family with children and grandchildren, still another is thankful that she was given a second chance. I too am grateful for the second chance, in my opinion it only could have been from a Divine nature. That experience has brought me to a much more spiritual place and prompted me to seek this all powerful, all knowing, loving yet disciplining God. What say you on this, what are your thought divine, fact or fiction?

Wednesday, August 26, 2009

Under the Radar

After applying for a Volunteer Chaplaincy position at Woodrow Wilson Rehabilitation Center, I get word three weeks later. The Chaplain calls me and says, "you were approved three weeks already, where are you?! Well, talk about a miscommunication on the parts of my bureaucratic buddies lol. Anyway, knowing that I was expected to be there much earlier, Robin and I jumped in the mini and headed over to report for duty.

Once we got there, I drove my massive wheelchair all jacked up with my vent, suction bag (never leave home without it), a D Tank of 02, and of course my handy dandy little pulse oximeter down the well lit newly renovated hallway of the Medical Rehab Services building. Behind this massive overly dramatic nurse's station were what seemed like tiny little people in comparison to the huge cabinet like structure. I think they were equally confused about who I was and what my business was. So, feeling a bit awkward I said, "Hey guys, I'm your new Chaplain." In typical WWRC fashion everyone was clueless do to the fact that my supervisor failed to mention me to anyone. It seems I had flown in under the the radar ; I had no place to work like an office, no lamp, and no computer, quite a welcome wouldn't you say? I receive a phone call this afternoon that sets me back to were I started. It seams the are in the midst of reimplementing the volunteer program at the Medical Unit; I can only hope it doesn't take them several months to accomplish. It seems so simple to me but anything dealing with government is pain strikingly slow.

Sunday, August 23, 2009

Fear

Over the past two weeks or so, the atmosphere has had an erie, captivating feel. We are certainly not anywhere in unity as a country over this new health care proposal by President Obama. This fear that has gripped our nation concerns me more than the overhauling of our much corrupted health care. I'm not going to even prentend I have a clue as to what is going on and I admit our health care needs some much needed help. Here's the thing, something has got to change in order for things to get better and I think obiviously it's going to take a lot of time, money, and courage as we change for the better.

We must be aware of what our government and keep it in check. In no way do I agree with some of the policies that I see in place by December but, we conservatives especially need to get a grip. It is hard for me to say this because I consider myself a very conservative person and those who know me would agree. We have to stop letting fear get in our minds and put ridiculous notions there. I don't think the government is going to erraticate seniors and disabled individuals nor do I think euthanasia is going take place anytime soon. Lets keep in mind that the Constitution protects us from such things with the Rehabilitation Act of 76 and the Americans With Disabilities Act. I was reminded by a brother last night the we the people are still in control and the government must do as we say. I also believe we still have a voice; now do we have the courage to speak out.

As for my Christian brothers and sisters out there, I am down right disqusted with "Fearful Children of God." Your very concerns and fears shed a very bad example for the whole world. We have been saved, sanctified, and delivered by Jesus Christ and we have nothing to fear, nothing! Look at how we have become so untrusting to God the Father; have we completely turned our backs on He whom loved us so? We are no betther than those who physically crucified Jesus, our Savior. If we are for Christ, then who shall we fear? What's impossible with God?

Thursday, August 6, 2009

Attached!

Here I sit at my computer typing away while my external vent battery charges from yet a blown fuse. Blown fuses occur at the most inopportune times because the battery does not charge as a result of the blown fuse. I don't know why but our power flickers very often in our neighborhood and each time it does blown fuse. We have tried to increase the amperage from 8 -10 and it seemed to help for a little while. I'm surprised that these boxes with fuses even exist with the technical advances over the years. Looks like they would have gone to using breaker systems. Anyway, I'll be off and running in about two years lol hours. As if I have something better to do; I guess Tom Petty was right; "The waiting is the hardest part."

I also had a nurse come and orient to provide me with some much needed weekend care that hasn't occurred in a year, wow, an entire year which is crazy; They say that there is a nursing shortage which is just an excuse for saying they get what they want otherwise refuse the case. Nurses have the agency by there you know whats, the agencies ultimately work for the nurses. I think it's a lack of compassion that is the biggest hurdle for the patient. Nurses I have observed say when they'll work, how they work, and where to work. Another thing that drives me crazy about agency is when they call and say'"So and so has been a RN for 18 years, worked in ICU, and is familiar with trachs and vents." I say that stuff is all rubbish and means nothing to me. Not one of thee nurses have worked out for me; I'm mean we are all different and have different needs and hello all vents are not the same. Besides, who deals with vents in hospital? that's right! Respiratory Therapist. So pity the nurse right? I say there is no excuse for incompetent nurses and I refuse to risk my health dealing with uneducated nurses. If you are a nurse who wants to go home health I say go for it, but please do some research before attempting a vent case.

As I sit here with my thoughts, I would like to say something about this Health Care Recovery Plan or "Destruction" if Obama has anything to do with it. First, the health care in our country is in need of reform but not complete overhaul; some things do work. Our health care debt is the result of greed and mismanaging of money that benefits pharmaceuticals, Doctors, and even Government officials. I mean the CEO of a hospital makes at least $100,000 and do we really want to know what the pharmaceuticals make? Does Obama actually believe private insurance is going to carry us who have preexisting illnesses such as DMD or MS? Even if they did, how are we who are on SSI and Disability going to afford to "buy in." We already have a Medicaid buy in program, but I don't even come close to being able to financially buy in. Also, remember the Government will be a key player in the "Socialistic" health care proposal rather they admit it or not. I have experienced and still am on Government provided health care which I am greteful for but there is an incredible amount of policy, paperwork, and rejections of what they "deem," necessary. Maybe if we were not so focused on building our hospitals to look like museums, we may be able to afford health care for all of us.

Friday, July 31, 2009

Excerpt From A Book In Progress

I remember one time in particular when I was in my room. I saw Robin peeling down the hallway headed straight toward me as I sat there. I thought to myself “Is she, nah,” “no she, oh crap!” Before I had a chance to move, crash! She rammed her chair right smack into me. I was in complete shock and could not believe she tried to murder me with her vehicle; vehicular man slaughter if you will.

By then, I was brave enough to ask her to be my girlfriend. So, I sent her an email, how pathetic was that, asking if she would like to go out with me. I received a reply that I was so hoping not to get. It said no, I am focused on my school work, but we can just be friends. My heart was crushed by the reply, and for a couple of days I tried to avoid her. When I did see her, I would pass by her without speaking to her. I heard her say to another student “what’s his problem?” Eventually I got over the heart stomp and picked my pride up off the floor. I began chasing after her again.

I noticed after my efforts had failed, with asking her out, she started to keep her distance from me. In fact, she found another guy to hang out with. Thomas Blake was his name; he was in her accounting class. He was a 6 foot tall, long hair, redneck wannabe. Often, he was referred to as T. He also had a vulgar dialect that he used to get attention. It nearly broke my heart to see my angel with him.

On several occasions, I had run ins with Mr. Blake. One day he and my beloved were gathered together with a group of his friends on the sidewalk. This struck a nerve within me; I sped toward them in my wheelchair. As I approached, I blasted past them like a wayward rocket. I repeated this act of aggression three more times; each time getting closer and closer to T. The third time I raced past them, T said in an authoritative voice “slow it down Mike!” With that I was satisfied and stopped trying to provoke him. You see, my mission was complete, I had got his attention.

The second time T and I had came across each other was in a little garden designated for students to enjoy. In the garden was a small gazebo which students often sat. One evening I was cruising around the garden looking for a special someone. I found her and T sitting there under the hot summer sun. As I approached, T stared at me with his sneaky, smug look on his face. Not letting him get to me, I made my way toward her. As I got closer, T rolled over to the entrance of the gazebo and blocked it with his wheelchair. Still, I did not stop inching toward them. Then, with no warning T raised his leg up as to say “come any closer and I’ll kick you!” I looked at her as if to say “call of this despicable creature off.” She replied to my dismayed face “don’t look at me,” she said. At that moment the primordial beast in me started to appear. The hair on the back of my neck stood up, I began to tremble inside, my blood began to boil; I wanted to rip his head off. Fortunately, I refrained from any violence and calmed down a little. I did not go away instead I parked myself at the entrance and waited there until they left.